Back to reality 

Scott has gone back to work So it’s been just Lincoln and I! I was terrified to be without Scott since its been the three of us, 24/7 since June 23rd! We had a great system, the three of us, but Lincoln and I are starting to get into a routine and its been wonderful. He is making great strides sitting, babbling, rolling over, tasting … Continue reading Back to reality 

Adapting

Scott and I are still adapting to being back home. So far we have been admitted to CHOP twice and have had appointments after appointments since we’ve been discharged. Lincoln has been great through this all; he hardly complains.The times we aren’t doing something cardiac related, we are 100% making the most of it. We’ve visited my grandmom, started planning my sister’s wedding, we’ve been … Continue reading Adapting