Recent changes 

I’m trying to be better at updating on positive things that are happening but we are having quite a run of bad luck lately. Scott and I recently took Lincoln to the emergency department because his g-tube was dislodged. I was so relieved to tell the girls at the front desk of the ED that this wasn’t cardiac related–but by the time we got to … Continue reading Recent changes 

Being your child’s best advocate. 

After a long run of Lincoln doing what we thought was very well, we had a pretty big wake up call. Just recently, Scott and I found out all of the rhythm issues Lincoln was having at the Mayo Clinic never actually subsided. We thought when we left Mayo that the medications were keeping him out of SVT ( a dangerously fast heart rate that … Continue reading Being your child’s best advocate.